Monday, July 16, 2007

It's getting harder and harder to update my blog now.

Alex is so full of life and so much fun to be with. Jeremy had taken one shift off from work to be with us - so, he had 12 days off in a row. Both Jeremy and I have been spending a lot of time taking him to Legoland and playing with him on the floor with Lego and play dough. Here's a summary of what's on last week.

Monday (9/7/07)

We went to Legoland for two hours in the morning and then bought him a box of Lego. Came home and Alex had his usual nap. While he was napping, Jeremy and I were playing with his Lego ... ahhhhhh brings back memories. Did you know? I have never owned a Lego set until now. I used to play them at my cousin's house but Jeremy used to spend hours playing with them as a child.

Tuesday (10/7/07)

Jeremy went to see the GP in the morning. He has been complaining about being constantly tired and woke up feeling tireder (is there even such a word?) than before he went to bed. Anyway, the doctor prescribed a painkiller and he has been feeling much better since. It's a combination of his shift, bad sleeping posture, stress, worries and pain. Poor Old Sod! As for me, the GP rang and spoke to me about my hay fever (I tell you, our GP is the best). Gave me a prescription and I have been taking them since. It's miracle pill and I can even go near the Dog.

Wednesday (11/7/07)

Same old same old every Wednesday. Alex goes to nursery and then we go to Family Support Group at Margaret Wells-Furby. But............. this week is a little different. I went to the school for a short presentation by the School Council and then join Jem and Alex at the Group later. The year 6 students wanted to show the Governors what they have done throughout the year and I must say, I am so proud of them. It makes you feel that volunteering and giving your time is all worthwhile. Great Job kids!

Thursday (12/7/07)

Alex went to nursery as usual - nothing much to report except he has been a mischievous little imp playing tricks on his carers and fed himself too. I went to the school for their year end Play - Robin Hood. It was performed by the year 5 and year 6 students - they were amazing. I cried a little but managed to hold them back. Extremely proud of them and yet, I cannot stop thinking whether Alex will be performing on stage when he gets a little older.

Friday (13/7/07)

Friday the 13th ..... and yeah ...... we went to the movies for the first time (what seemed like eternity). We made an arrangement with the nursery to put Alex there all day (pick him up at 6:00pm) when we need a break. The manager, Nathan was extremely kind and said Friday is fine but Wednesdays and Thursdays, we have to give ample notice as they are short of staff. So we tried him today. We went to see Harry Potter and it was a better one than the last lot as the kids are more mature now and their acting skills are slightly better. But we couldn't really enjoy ourselves as we were expecting a call any minute to say that Alex is in distress. But the call didn't come and we went to pick him up at 5:30pm. He was fine and even enjoyed himself. That's a relief!

Saturday (14/7/07)

Drama day. We had a scare and luckily it turned out alright.

We went to Legoland again today with Peter (Alex's Grandad). Barney, BJ and Baby Bop were performing at Legoland together with Bob the Builder and Sportacus from Lazy Town.

The place was heaving with people. We went there at 10:45am and we were already parking at the relief car parks and a long way to the entrance.

There is no way you could go on a ride without queuing for less than half an hour. We could have used the easier alternative - we could get an exit pass for Alex because of his diagnosis. Once you have the pass, you could just go to the exit and go on the ride without having to wait. But, we want to train Alex to wait and this is a good exercise. The pass is good for more severe cases but I think Alex is not at that stage and we want him to experience real life as there is no short cut in life and just because you have a disability, not everyone is that understanding.

It was hot and dry, we were walking about trying to find somewhere quieter - so we don't have to wait that long for a ride. Impossible!

Anyway, not long after lunch, Peter was feeling quizzy and luckily we were just outside the first aid room. He had a rest in there and felt much better after that. We decided to go home as there is no way we could enjoy ourselves with so many people around.

The security car came to get us from the first aid room and took us to the car park instead of walking for miles. We were told that there were 15,000 cars in the parking today and another 500 outside the park and people walking up hill to see Barney. Someone collapsed on the way up and needed emergency aid. The things people do for their kids.

Thumbs up for Legoland.

Sunday (15/7/07)

Not a good day. Alex threw up all day (projectile vomiting) because of yesterday's heat. Freaky weather I tell you. One minute it's wet like anything and the next it's hot like an oven.

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